Adventures, Random Thoughts, and A Little Zen

Adventures, Random Thoughts, and A Little Zen
Boneyard Beach, Bull Island, Cape Romain National Wildlife Refuge, South Carolina

Tuesday, October 22, 2013

Bits and Pieces


Our first visit to the KU Cancer Center in Lee’s Summit was for Miki’s second round of chemo and unknowingly it started us on a trail, following bits and pieces of stories told by others facing the same foe.  Little did we know then, but that foreshadowing would take us to places and experiences that would create Miki’s story, that at some point will most likely become part of another’s trail as they begin their journey down this son-of-a-bitch of a road.

This latest experience that landed Miki back at Centerpoint Medical Center, started with a fever that ended up as pneumonia.  We had heard bits and pieces of others that had been there and done that and the nurses that in so many words made us think that antibiotics and chemo drugs don’t play well together, so the next round could be compromised and postponed, as was Miki’s.  She would begin round 5 this Wednesday (tomorrow), preceded by a C/T scan Tuesday (today) that in our dreams would show an amazing reduction in cancer growth.  But that will have to wait.  There is evidently a collapsed lung that is trying to work its way back to reinflating itself, so a long needle does not have to come into play in this part of her story.

I must say this visit has been one of the low points of this journey, right along side of her first round of chemo in the hospital and the original search for the culprit causing her leg pain.  The good thing about low points is that there are higher ones before and after them.  Yes, Miki had a high fever that was a catalyst for my wild imagination to spread its wings for a bit last Saturday night.  Yes, it lead to a diagnosis of pneumonia, an event that no one wants to experience even without cancer about.  And yes, even with a collapsed lung, the lung experiencing difficulty already, Miki finds a way to carry on.  As long as she can do that, I can follow suit.  It’s when there is doubt behind her eyes or a lack of energy for trying that I feel us bottoming out.  The good thing is, we seem to not stay there too long.  It is more of a bounce off the bottom rather than a landing on it.

Some of that bounce came from Miki receiving a couple more bags of blood yesterday; as her hemoglobin was low again…it’s a cancer thing.  Her white blood cell count was up too, thanks to a special shot that encourages white blood cell growth…it’s a cancer thing.  And more importantly, I kicked her butt in Cribbage…TWICE!!...that’s not a cancer thing.  These bits and pieces were experiences we had only heard about from others that had been where we are now.  I think the key to getting through this is not to listen to others stories anymore!  Kidding.  We recently had a visit from a friend of ours, Ellen, who I use to teach with a looooooong time ago.  She had her own cancer story to share that occurred during a period of time we were out of touch.  While she and Miki were visiting that afternoon, I observed there interaction was different than others that had come to visit.  There was a comradery through which they were relating.  To me it appeared special; as if they were twins speaking their own language.
Doesn't she look GOOD after a good old
Cribbage butt-kickin'?
I don’t know what is behind Miki’s eyes some days or how hard it must be to call upon energy that just isn’t there, but I do know what bits and pieces she is storing up to share with others someday will make their road a little less of a S.O.B.



My Zen from Home:  Something fascinating happens when Miki is at this hospital.  Within the time constraints of a nurses shift of 12 hours and sometimes within minutes, Miki will know more about her nurse or respiratory therapist, or cleaning lady, than they would offer up after free drinks on a Friday night out.  Those of you that know Miki, understand this.  She was taken down for a C/T scan this afternoon, by a complete stranger and when they returned Miki was learning intimate details of why her baby’s life was cut short.  They were crying together, talking as if they had history, and hugged before parting.  How does that happen?  I don’t know, but I can imagine it is the same thing that is going to see her through this mess and out the other side.  One way or another, she is a force to be reckoned with…collapsed lung or not.

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