Adventures, Random Thoughts, and A Little Zen

Adventures, Random Thoughts, and A Little Zen
Boneyard Beach, Bull Island, Cape Romain National Wildlife Refuge, South Carolina

Friday, November 15, 2013

Get In, Sit Down, Shut Up & Hang On!


What does the infamous bumper sticker and title of this posting have in common with us?  Kinda describes our last 48 hours.

The last posting had us readying ourselves for a promising visit to KU Med. Center.  We were to meet with their lung specialist and then a genie would appear and grant us three wishes.  Well, we found the satellite office only after the GPS on my phone took us 20 minutes the wrong way, to the wrong destination…it was only off by 10,000 (according to the address numbers).  I felt a little less of a fool when the nurse said we were not the first to claim that excuse for being late.  We did meet with a very nice oncologist, but recognized within a few minutes that he, like out previous oncologist, were reading from the same script.  With no new signs of hope, we left feeling like we needed to be getting Miki some kind of treatment, even if it wasn’t all that promising.

Fast forward a few hours.  We heard from friends who have been staunch supporters of ours and have had their own run-in with this crap called cancer.  They came into the picture a while back, about the time we were feeling a little like a ship drifting at sea.  Their energy got our mojo back on track and for that we are deeply grateful.  We contacted them to let them know of the outcome from our meeting with KU.  Once again, they felt strongly that we pursue MD Anderson and even though we had a date already, get creative and work to get it moved up.

Our day began by making contact with one of the people we have been in touch with in Houston and letting them know that for Miki’s sake, sooner is way better than later to get what help they may offer.  She took us seriously and said she would see what she could shake from the tree and get back to us by the end of the day.

In the mean time, Miki had an MRI of her heart today at St. Luke’s at the Plaza.  The cardiologist that we saw to make sure her hummingbird heart rate was not adding to the whole puzzle, wanted to rule out that any cancer had spread to the heart.  Okay…sounds good.  We failed to get the memo that it is a two + hour event.  Long story short…Miki did well, even though she dozed a few times and we will get the report next week.

We headed home by way of Winstead’s on the Plaza for a few calories.  Miki forced down a few fries, while I had one of everything they offered.  It was about 3 pm and we had not had lunch, thinking it would be a relatively quick scan.

Upon our arrival home, we were anxious to see if the tree house passed it’s final inspection by the city codes department.  It did not.  Don’t be sad.  It was my fault and was a silly oversight on my part and has already been fixed.  So, Monday it should pass and we will officially be tree housed out.

At about 4:30, we got a call from our Texas girl who was seeing “what she could do.”  She directed me to call our initial rep to see if she had a waiting list we could get on.  I did.  They don’t.  But she said she would let us know if there was a cancellation (does that sound like a waiting list?).  No matter.  About 10 minutes later she calls back and says there was a cancellation and that there was an opening next Friday, the 22.  I said…”WE’LL TAKE IT!”  Miki’s got a few more angels in her corner.

We leave next Wednesday to see where this ray of hope takes us next.  We’ll Get In, Sit Down, Shut Up, Hang On…and say THANKS!  



My Zen from Home:  See above.

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